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Caroline-J
#1 Posted : Thursday, October 24, 2013 8:07:47 PM Quote
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Joined: 12/23/2009
Posts: 3
Hi my name is Caroline I have just been diagnosed with zero negative rheumatoid arthritis I also have lupus I am on methotrexate and also on hydroxychloroquine and I am also on steroids at the moment. I have had lupus since 2004. At the moment I have no side effects from any of the medication. I would like to hear from anyone to give me your experiences on any of these tablets and also to have a chat with other people .
Kathleen_C
#2 Posted : Thursday, October 24, 2013 8:19:29 PM Quote
Rank: Advanced Member


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Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Caroline, and a warm welcome to the forum - lots of info and empathy here for you if you need it.

I have no experience of lupus, though there are folks on here who have, and I`m sure they will post in due course. I was diagnosed with RA in Jan 2006, so almost 8 years ago. Methotrexate didn`t work for me I`m afraid, and in fact it put me in hospital with respiratory problems, so I`m glad you`ve had no side effects. I tried and failed on various DMARDs and combinations of DMARDs, but my RA wasn`t under any sort of control until I began anti-TNF therapy - humira - over 6 years ago now.

Most of us have had steroids at some point in our RA "journey," but I`m not taking any at present, though I had two steroid injections into a trochanteric bursa in the summer.

Do keep posting,

Kathleen x

Paul Barrett
#3 Posted : Thursday, October 24, 2013 8:49:48 PM Quote
Rank: Advanced Member


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Joined: 4/24/2013
Posts: 703
Location: Hexham
Welcome to forum Caroline.

No side effects - wow that's great news. It might tempt fate to talk about possible side effects - so I won't. Long may it continue for you.

There are sometimes familial tendencies for these diseases. My sister has Lupus while I have enthesitis - we swap symptoms and treatment stories all the time. :)

It's a friendly bunch of people on here so feel free to quiz us or just shoot the breeze.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
gogs
#4 Posted : Saturday, October 26, 2013 4:29:51 PM Quote
Rank: Advanced Member


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Joined: 10/20/2012
Posts: 304
Location: Cheshire
Hi Caroline and welcome,

Sorry to hear you have recently been diagnosed with RA, you've already had your fair share with Lupus. What treatments were/are you on for your Lupus?
Have they added anything new, perhaps Methotrexate?

I am presently taking Hydrochloroquine, and took that from when I was first diagnosed 12 months ago. I've had no problems with it.
I've been on steroids all of that time, daily oral and intramuscular periodically.As you will no doubt be aware having had Lupus since 2004
steroids can be a problem producing more issues but you have to measure quality of life. I have always been unhappy about taking them, but
I know that without them I seize upSad I'm waiting to try some further medication quite soon but this has to monitored by the hospital as
the shared-care pathway with my GP doesn't cover him for six months, I do understand why.

Here's hoping you have a no problems with medication and that everything settles down fairly quickly for you.
Gogs
Lorna-A
#5 Posted : Sunday, January 19, 2014 7:22:15 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914

Hi Caroline,

I'm Lorna I have had RA for 6 years now. I was very ill to begin with but I keep well now. So glad you have found the forum, you asked about drugs. I take the same as you Hydrox and Mtx plus folic acid and a multivitamin each day. I have no problems now ( at first i did, I think it was a shock to the system the triple therapy I was put on. ) I have taken the same two as you for the last 6 years, I no longer have any pain. It does get easier in time. Try taking your Mtx at night then you are sleeping when the effects are in your system. Feel free to as NRAS for my number for a chat if you like.

Take care Lorna x
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